The 20 Best Koolen De Vries Syndrome Doctors Near Me in La Crosse, WI

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 12 doctor with experience in Koolen De Vries Syndrome near La Crosse, WI. Of these, 12 are Experienced.

Location
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12 providers found
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Gundersen Pharmacy

    1836 South Ave, 
    La Crosse, WI 
     (1.3 miles away)
    Languages Spoken:
    English

    Jedadiah Schaller is a Radiologist practicing medicine in La Crosse, Wisconsin. Dr. Schaller is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Lung Nodules, Melorheostosis, Melorheostosis with Osteopoikilosis, and Osteopenia.

    Experienced in Koolen De Vries Syndrome
    Endocrinology
    Experienced in Koolen De Vries Syndrome
    Endocrinology

    Gundersen Lutheran Medical Center Inc.

    1900 South Ave, 
    La Crosse, WI 
     (1.3 miles away)
    Languages Spoken:
    English

    Arnold Asp is an Endocrinologist practicing medicine in La Crosse, Wisconsin. Dr. Asp is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 34 other conditions, according to our data. His clinical expertise encompasses Type 1 Diabetes (T1D), Type 2 Diabetes (T2D), Maturity Onset Diabetes of the Young, and Graves Disease.

    Experienced in Koolen De Vries Syndrome
    Family Medicine
    Experienced in Koolen De Vries Syndrome
    Family Medicine

    Gundersen Pharmacy

    1836 South Ave, 
    La Crosse, WI 
     (1.3 miles away)
    Languages Spoken:
    English

    Cheng Her is a primary care provider, practicing in Family Medicine in La Crosse, Wisconsin. Dr. Her is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Cerebral Palsy, Jackson-Weiss Syndrome, Nevoid Basal Cell Carcinoma Syndrome, and Oculofaciocardiodental Syndrome.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Gundersen Pharmacy

    1836 South Ave, 
    La Crosse, WI 
     (1.3 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Mark Domroese is a Physiatrist practicing medicine in La Crosse, Wisconsin. Dr. Domroese is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Cerebral Palsy, Spastic Paraplegia-Epilepsy-Intellectual Disability Syndrome, Spastic Paraplegia Type 2, and Spastic Paraplegia Type 3A.

    Experienced in Koolen De Vries Syndrome
    General Surgery
    Experienced in Koolen De Vries Syndrome
    General Surgery

    Gundersen Pharmacy

    1836 South Ave, 
    La Crosse, WI 
     (1.3 miles away)
    Languages Spoken:
    English

    Brian Sieck is a General Surgeon practicing medicine in La Crosse, Wisconsin. Dr. Sieck is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Infant Hearing Loss, Cholesteatoma, DFNB1, and Familial Deafness.

    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner

    Gundersen Lutheran Clinic Pharmacy

    1836 South Ave, 
    La Crosse, WI 
     (1.3 miles away)
    Languages Spoken:
    English

    Mary Simon is a Nurse Practitioner practicing medicine in La Crosse, Wisconsin. Ms. Simon is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Koolen De Vries Syndrome and Vitamin D Deficiency.

    Experienced in Koolen De Vries Syndrome
    Sleep Medicine
    Experienced in Koolen De Vries Syndrome
    Sleep Medicine

    Gundersen Pharmacy

    1836 South Ave, 
    La Crosse, WI 
     (1.3 miles away)
    Languages Spoken:
    English

    Daren Tobert is a Sleep Medicine provider practicing medicine in La Crosse, Wisconsin. Dr. Tobert is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Obstructive Sleep Apnea, Lung Nodules, Lung Metastases, and Narcolepsy.

    Experienced in Koolen De Vries Syndrome
    Internal Medicine
    Experienced in Koolen De Vries Syndrome
    Internal Medicine

    Gundersen Pharmacy

    1836 South Ave, 
    La Crosse, WI 
     (1.3 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Stephanie Carroll is an Internal Medicine provider practicing medicine in La Crosse, Wisconsin. Dr. Carroll is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Koolen De Vries Syndrome, Hip Replacement, and Endoscopy.

    Experienced in Koolen De Vries Syndrome
    Internal Medicine
    Experienced in Koolen De Vries Syndrome
    Internal Medicine

    Gundersen Pharmacy

    1836 South Ave, 
    La Crosse, WI 
     (1.3 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Benny Kusuma is a primary care provider, practicing in Internal Medicine in La Crosse, Wisconsin. Dr. Kusuma is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Sepsis, Nijmegen Breakage Syndrome, Grix Blankenship Peterson Syndrome, and Bosma Arhinia Microphthalmia Syndrome.

    Experienced in Koolen De Vries Syndrome
    Internal Medicine
    Experienced in Koolen De Vries Syndrome
    Internal Medicine

    Gundersen Pharmacy

    1836 South Ave, 
    La Crosse, WI 
     (1.3 miles away)
    Languages Spoken:
    English

    Brian Mulrennan is a primary care provider, practicing in Internal Medicine in La Crosse, Wisconsin. Dr. Mulrennan is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Childhood Pancreatitis, Babesiosis, Acute Pancreatitis, Bone Marrow Aspiration, and Hip Replacement.

    Experienced in Koolen De Vries Syndrome
    Internal Medicine
    Experienced in Koolen De Vries Syndrome
    Internal Medicine

    Gundersen Pharmacy

    1836 South Ave, 
    La Crosse, WI 
     (1.3 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Ragasri Kumar is an Internal Medicine provider practicing medicine in La Crosse, Wisconsin. Dr. Kumar is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Memory Loss, Seizures, Partial Familial Epilepsy, and Partial Seizure.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Gundersen Lutheran Medical Center Inc

    1836 S Ave, 
    La Crosse, WI 
     (1.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Karyn Laursen is a Physiatrist practicing medicine in La Crosse, Wisconsin. Dr. Laursen is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Myotonia Congenita, Koolen De Vries Syndrome, CHARGE Syndrome, and Distal 18q Deletion Syndrome. Dr. Laursen is currently accepting new patients.

    Showing 1-12 of 12

    Last Updated: 04/28/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near La Crosse, WI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near La Crosse, WI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near La Crosse, WI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near La Crosse, WI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near La Crosse, WI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near La Crosse, WI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near La Crosse, WI?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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